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今晚的嘉宾 带来了她新的作品《依然爱丽丝》 My guest tonight -- She has a new film out called Still Alice
我会忘记约会 忘记要说的话 I can't remember appointments, words.
宝贝 我们都有断片的时候 只是我们变老了 Honey, we all have memory lapse. That's a sign of getting older,
有次我都想不起来葡萄糖怎么说 the other day, I couldn't remember the word um glucose.
不是那样 那感觉就像有东西从我脑中彻底消失了 It's not like that, it's like something just drops out
但目前没确诊吧 But there's no diagnoses yet,
没有 No
我觉得这太荒谬了 完全是胡说八道 well I think this is a ridiculous complete bullshit.
靠 你能不能把这当一回事 God Damn it! Why won't you take me seriously?
我知道自己是什么感觉 No, I know what I'm feeling.
我感觉我大脑快他妈当机了 我知道这是什么感觉 I know what it's feeling and it feels like my brain is fucking dying
我整个生活正在离我而去 and everything I've worked for in my entire life is going.
她做得很好 She's really good in this.
欢迎回来 Julianne Moore Please welcome back to the program Julianne Moore.
天啊 他们见到你很激动 My goodness. They are very excited to see you.
谢谢 都太好了 Thank you, that's very very nice.
刚在后台我看到了那个穿尿布的家伙 I just saw this really hot guy in a diaper backstage.
我们做到了 在过去这几个礼拜 We did that honestly, it's been one of those the past couple of weeks.
把Jason扔进尿布 We thought you know what, throw Jason in a diaper.
就是那样 以防万一 It's one of those things. In case of emergency-break glass.
Jason在那儿穿着尿布 And Jason's in there in a diaper.
他这样做了 太性感了 He's doing it and so he is so sexy.
他为了拯救我们才这么做的 Well, and he does it to save our souls.
祝贺你昨晚获得金球奖 Um, um, Congratulations on the Golden Globe Last night,
-谢谢 -很让人激动 Thank you very much, really exciting,
是你应得的 It's very well-deserved.
看这部片子很痛苦 This is Boy was I wrecked watching this film.
我不知道你的经历 我知道这是部独立电影你得尽快完成拍摄 Now um I don't know what your experience was, I know this is an independent film you had to do it quickly.
是的 Yeah.
我家族有患阿尔兹海默症的 I have a history in my family, Alzheimer's, dementia, or people who have died.
在电影里能明显发现 我们这些经历过的人有过的类似情况 You capture something in this that is remarkable, for those of us who have gone through these similar things,
不知道是否你在生活中有此经历 I don't know if you had that experience in your life.
我没有 我很幸运我个人之前并没有接触过这个病 No, I mean I had, I mean,that was interesting, I've been very lucky, and I haven't had any personal experience to Alzheimer's
我没有经历过并对它一无所知 and because I haven't and because I don't knew anything about it or the behaviors,
但我和制片人说我不会去演我没看到过的 I did say to the filmmakers that I didn't want to do anything on screen that I had't personally witnessed,
所以我做了很多研究 so I actually wanted to do a lot of research,
他们都完全不吝啬时间 分享给我他们的经历 and people were so generous with their time and their experience,
我接触的所有女性都能很清楚并准确地向我表达病症 and and all the women I spoke to were very articulate and very precise about what the behaviors were,
表达有何感觉 发生这个时怎么样子 何时体现的等 how did this feel and what happen when this happen, when did they first manifest,
每个人都帮了我很大的忙 um everybody was really very helpful.
所以我在电影里演的都是我确实看到过 有人讲给我听的行为 So everything I do in the movie, I actually, I saw, or was explained to me.
有一个时刻很特别 震撼到我 There was one particular moment, crushed me.
我说的是一种感觉 是当人突然迷失 There is a sense, when somebody is going through that, they get to a place where they are not,
就像跳Tone了 they don't really exist on the same cognitive plane.
是的 Right.
但一会儿又跳回来 你能从他们眼里看到恐惧 But they come back for a moment, and you see in their eyes that they're terrified.
是的 这感觉也是我问患者们时了解到的 Yes, and and one of the things that I heard from people too when I ask, you know, what is it like?
所以不是一直一个状态 时好时坏 It's not always the same. You literally have good days and bad days,
好的时候你认为自己完全正常 并没得病 Good days you think I'm fine I'm completely fine, I don't have Alzheimer's.
不好的时候你觉得什么都做不了 Bad day you're like I can't get through anything.
这样的情况时刻会发生 好像这种断片已经变成常规 And same thing will happen moment to moment, you will have this flashes of cognition they are normal.
之后你就会失去认知 But then you'll have drop outs,
比方说迷路对我来说不是到底是要往左还是往右 you know like for example, getting lost was explained to me not like do I go left do I go right?
像是种更难受的感觉 你看着一样东西但不知道这是什么 But more like a panic attack, you're looking at something that you don't know what it is,
然后只听得到自己心脏狂跳 呼吸急促 and your heart starts to pound. You are short of breath
但每个人都叫你冷静 待着别动 做深呼吸 And they, everyone told me just stay calm, stay where you are, take a deep breath and wait.
他们会说能不走就不要走动 they say don't go anywhere if you can possibly avoid it.
另一方面这也好的时刻 But then moments of great joy.
是的 Yeah.
记不得其实也蛮幸福的 Sort of, I can't remember, real happiness
但对被你遗忘的人来说比较痛苦 and mostly becoming tougher for those around as the person slips away,
他们对你而言不被保存 they enter a place almost out of preservation.
有点好玩 可能在某个时候 某个地方 他们存在你却不在 That is a little more joyful,maybe at a different time, different place, they exist, But you don't,
你为他们的消失而开心 but you're happy for their escape.
如果真那样 还是要取决于个人 If it happens that way, and it depends on the individual.
没错 That's right.
说实在的 当你有时去拒绝更多时反而得到快乐 So literally, in stages where people are more declined, they will sometime reverse to places where they were happiest.
我就碰到过一个很喜欢交际的人 There was a guy that I met actually in a facility who was really gregarious.
看到每个进来的人他都会问你叫什么 说坐下陪我讲会儿 Everybody as they came in, he'd say you know, what's your name? Sit down sister, talk to me a while.
他以前有家酒吧 在第二大道 And he had owned bar on Second Avenue.
他一直都是个酒保 He's been a bartender his entire life,
他后来还是爱交际的 喜欢和人聊 and that remained with him, you know, that kind of sociability, and love of conversation,
所以我发现患病后并不会像完全变了一个人那样 so I did find that people did not It's not like someone disappears entirely,
还是有以前的个性的 there was always a sense of who they are.
这很有趣 Very interesting as it goes.
与通常都是70多岁人群得病不同的是 她是早发性的 And this is very different too, this is early onset as opposed to somebody
是的 也有15%的患病人群是早发性的 都不超过65岁 Yes, 15% of the Alzheimer's population has early onset or young onset, which is younger than 65
这本书的作者Lisa Genova 她的外婆就患阿尔兹海默症 but Lisa Genova who write the book, her grandmother had Alzheimer's
有人会理解那种痴呆是正常的老年迹象 而非疾病 And she，so off then is a misnomer that dementia is a part, a normal part of aging when in fact it's not, it's a disease.
所以她觉得如果呈现在年轻点的人身上可能更好 病症也更容易被人理解 So she felt like the disease would be better presented and people will understand the symptoms if she placed it in the young individual.
本片导演还是编剧是患有肌萎缩侧索硬化症 Now is it true that the director or the writer has an ALS diagnosis, almost the anthesis.
也是像阿尔兹海默的一种运动性神经元疾病 The strange inversion almost of Alzheimer's.
没错 Wash和Richard是一对 Exactly, Wash Westmoreland and Richard Glatzer are a couple,
他们是伴侣 并且结婚了 也是工作伙伴 they are romantically partners, they are married. And they're also working partners
Richard被诊断患有肌萎缩侧索硬化症 and Richard was diagnoses with ALS
是在做这电影时吗 While he was doing the project?
不 之前 我一开始见他们时他还没有这样 只是讲话很困难 No before before, when I first met them, he wasn't, he had difficulty with his speech.
但一年后当我们开拍时 他上半身几乎瘫痪了 只能发声 But by the time we shot, a year later, he had really lost his physicality from the waist up, so he only spoke out,
可以用其中一只手划Ipad he could use his one hand he could direct through the iPad.
就是这样 在这种情况下 他们还在拍一部和他们正经历的情况类似的电影 So that was the thing, is that in the midst of this, these guys were making a movie that really paralleled with what their experience was.
很了不起 It's extraordinary.
可能也因为这样 电影才能扣人心弦 Maybe that comes from it, it's gripping, man.
超级亲身的经历 It feels super personal.
是的 很特殊 非常特殊 Yes, yes, very specific. Very specific.
我觉得在面对失去的时候 你才真正知道你有多爱 I, I think that in the face of, I think you sort of learn how much you love to live in the face of loss, you know.
我想这也是他们正在经历的 And I think that’s one of the things that they were experiencing,
所以这不是关于失去 而是高兴的事 so it was really about, not diminishment, but you know, joy.
你把它演绎得很好 极具张力 You did a great job translating it to the screen. Very very powerful.
《依然爱丽丝》周五将在部分城市上映 Um, Still Alice opens in selected cities on Friday.
是的 周五 Yeah, Friday.
这是Julianne Moore Come on! It's Julianne Moore.